Caregiver Resources
The role of a caregiver is usually one that a person must take on without any prior warning. It is a major change to anyone’s lifestyle. A caregiver must be on-call twenty-four hours a day. They must always be on their toes. They must be organized, well informed and watchful. They must be very patient, helpful and warm-hearted towards their loved one’s changing physical/mental condition. All this is difficult to master. A caregiver must also have inner strength and determination to carefully balance the new demands that lie ahead. For more information visit https://myparkinsons.org/parkinsons-caregiver-role/
Making simple home adjustments can make it easier. This article gives some good suggestions: https://parkinsonsdisease.net/living/home-adjustments/
Book Resources for Caregivers
"The Comfort of Home, Parkinson Disease Edition": A Guide for Parkinson Disease Caregivers by Maria M. Meyer
Everything You Need to Know About Caregiving for Parkinson’s Disease by Lianna Marie
A Parkinson's Primer (An Indispensible Guide to Parkinson's Disease for Patients and Their Families) by John M. Vine
Websites for Caregivers
APDA Resources for Care Partners
https://www.apdaparkinson.org/resources-support/for-caregivers/
Family Caregiver Alliance
https://www.caregiver.org/resource/webinar-caregiver-assessment-i-why-and-what-should-we-assess/
https://nvcaregiverscoalition.com/
Parkinson's Disease Caregiver Information
Community Foundation of Western Nevada- Washoe Caregivers
We connect you with resources to help you care for an aging family member.
If you are a family caregiver and want to know how you can get paid go to https://washoecaregivers.org/compensation/. For further assistance, please call the Community Foundation at 775-333-5499.
Local Support Groups for Caregivers
The Continuum Caregiver Support Group (For Everyone)
Meets once a month at 5:30 pm - call The Continuum for more details
(775) 829-4700
Carson City Caregiver Support Group (All Caregivers)
St. Peter's Episcopal Church
Phone 775-882-1534
Contact the support group leader, Dr. Deb Cash, for more information: nvdebcash41@yahoo.com
Online Support Groups for Caregivers
APDA Virtual Care Partner Support Group
https://www.apdaparkinson.org/events/virtual-parkinsons-care-partner-support-group/